January 31, 2019
Marshall Medical Centers will begin an ostomy support group in
February. The group is called “InsideOut – ostomy support group”.
An ostomy is an opening created surgically, at the abdomen, that
allows for elimination of bodily waste.
An ostomy may be needed in instances such as inflammatory bowel
disease, diverticulitis, cancer, and severe injury to the abdomen.
InsideOut’s first meeting is Sunday, February 10 at 2 p.m. at
Marshall Medical’s Cancer Care Center. The group will meet monthly.
The support group will focus on ostomy education, covering topics
including skincare and supplies, as well as, provide the opportunity for
attendants to share their experiences and learn from each other.
InsideOut is open to individuals who currently have an ostomy,
have previously had an ostomy, are considering an ostomy procedure, or provide
support to someone who has an ostomy.
Griff Amos, a lab assistant at the Cancer Care Center, has lived
with an ostomy since 2012, and he is the driving force behind the start of the
new support group.
Amos’ personal experience and discussions with the patients he
sees at the Cancer Care Center, who have their own ostomies, lead him to start
a support group in the local community.
Amos said he and patients relate to each other over the
commonality. He stated that several patients expressed interest in a support
group, and it is something the area has needed for some time, recalling his
desire for one since he first received his own ostomy.
Last December, after another patient mentioned interest, Amos knew
an ostomy support group was something that could help many. He presented the
idea to the Cancer Care Centers’s director, Cindy Sparkman, which set the
official planning for the group into motion.
In addition to increasing knowledge, Amos hopes InsideOut will
help attendants become more comfortable and confident towards ostomies instead
of viewing them as limitations.
Amos spoke about misconceptions some who have or may be in need of
an ostomy have regarding ostomies.
“[P]eople think they can’t do anything, and people think they’re
going to be homebound,” Amos said, “I know patients who have had them and have
been skydiving and scuba diving.”
Connie Warren, a Cancer Care Center patient who has an ostomy, is
excited about InsideOut. She plans to attend group meetings and looks forward
to learning from others.
“I’m excited about the group and to see where it takes us,” said
Warren.
For more information about InsideOut call the Cancer Care Center at (256) 894-6750.
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NOTE: This is a “lay-led” support group designed with the goal of helping ostomy patients with the emotional and daily management of their ostomy. It is designed to provide peer support and education. For medical advice, patients should seek guidance from a trained ostomy professional.